Worrying is not the answer

What a week... just as well I am not working right now as I seem to have too little hours in the day to do all I have (want?) to do! Good stuff though, so don´t worry. Seen as worrying is not the answer. I know, that might not go for all and everyone, but I have decided that this will be my adagio for the months and years to come. 

Late Monday afternoon, we came back from the most amazing weekend in Ålesund. And early Tuesday morning, the Helsebus took me to my onco appointment in Oslo. Seen as the onco does not come to the hospital in Lillehammer anymore and seen as I don´t want to trade this onco in for another one, I kindly convinced him to take me on as a patient in Oslo.
The Helsebus is a great Norwegian invention that takes you in a luxury touringcare with nurse on board (and plenty of kind Norwegian gentlemen of at least 85 years old and eager to talk) to the different hospitals in Oslo. Saves you loads of time and not to mention Corona worries not having to navigate Oslo public transport. 

The onco always tries to start our meetings with small talk which I am not really interested in. I did oblige though as he seemed a bit nervous. I gave up after 3 sentences and asked him whether he had good or bad news. And same as always he said with the same as always worried look on his face "I have both good and bad news". Well the good news is really good seen as the lungs seem to be clean and the skelet metastases are stabile. But, yep, there´s always a but and I have become pretty good at bracing for the buts. This time the but is that the last treatment did not stop whatever is going on in the liver. And that has been the case with pretty much all the treatments I have had the past 2,5-3 years: the treatment is good for one part and sort of forgets that there is more that needs taking care of. 
So, as expected: I will start a new type of chemo on Monday. Should be less trouble with the side effects, than again, who knows as it all works on a very personal level. Both the cancer as well as the medicine: what works for one does not necessarily have to work for someone else. 

Over the years I have had quite the list of chemo therapies and other medicine. So the latest argument my onco and me are having is that I don´t want to accept that there is an end to the list of possible medicines. He is not totally on board yet to go the experimental way, should we come to the end of the standard list of medicines. Then again, we are not there yet and so far we have always seen eye-to-eye in the end so I am not going to worry about that now. 

In the meantime, some frequently asked questions answered:
- Can they operate on your liver? I guess they could, but it wouldn´t make a heck of a lot of difference seen as the metastases are so spread out of the entire liver, it would be difficult to know what part to cut. 
- Is a liver transplant an option? Probably yes, but not one they are willing to go for now. The chances are high the cancer will reoccur in the new liver again too plus all the risks of rejection of the new liver. 
- Have I heard back from AvL? Nope. Not yet and yes, me too I am longing to hear from them so just now I have sent them another kind mail to ask them whether they finally received all the info so that we can proceed

Remember the good old days where Marco and me had ´projects´ with the Belastingdienst in the Netherlands and different Swedish instances that sent difficult letters demanding money or refusing to pay out money to us? Well, just got another one of those projects again with the kind people of Försäkringskassan in Sweden sending me a totally random letter asking for money to be paid promptly. Luckily Marco made a template for angry letters to Swedish instances and I enclosed a heap of attachments so that should keep them busy for a while. Fingers crossed the outcome will be the same as with all the other projects: either I don´t need to pay or I will get the money back. 

I am not going to worry about it, won´t do me no good! 

Got plenty to look forward to, first of all: Mik´s birthday in exactly one week´s time! 

I hope you all are having a fab day too. Take care and until next time with hopefully way more good news!