- 1.the imparting or exchanging of information by speaking, writing, or using some other medium."television is an effective means of communication"
- 2.means of sending or receiving information, such as telephone lines or computers."satellite communications"
Guess what? Yes! I heard from the good people from the AvL today. Thanks to all you guys giving me the moral support I needed, I sent them a good old ´Jo-is-not-happy-mail´ and today I received the long awaited phone call from them.
This is the mail I sent them:
Good morning, it´s me again!
I hope you had as nice a weekend as I did. Since the coming week is booked solid with hospital visits, I am sending you this update so that you know exactly how and when it is most convenient to contact me.
First a little background:
Since January of this year I have been a single mother of 47 years old with the world's most wonderful son of almost 13. My husband, Mik's father died of cancer after only one month in the hospital. The week after my husband´s untimely death, I started my 9th chemo variant. My Norwegian oncologist has hinted that we are now getting pretty much to the end of the list of possible chemos. Since it is the most important thing there is for me to be here as Mik´s mum, I have taken the step to contact the AvL to request a 2nd opinion. With the breast cancer now spread to different places in my body, I am 'kinda on the clock here'.
Perhaps this will give more insight into my disappointment with the email I received from you only last Friday after I sent you a reminder email. When you have both my e-mail address and my telephone number and after 3 weeks I have to ask if something has happened, I am disappointed and I have the feeling that my request has not been taken seriously.
Now I really do understand that I am not the only one contacting you. And I also understand that the pressure is high, especially with the current pandemic raging.
Nevertheless, the pressure on me is also high. Mik still has me as his only surviving parent. I want to do my utmost and leave no stone unturned to ensure that I can be here as long as possible and you play a very important role in that.
I am a big believer in 2nd chances, so: will I hear from you this week?
< here I included my phone number with the 00 and the country code, again... and my mail address, yet again >
By the way: next Tuesday I will be back all day with another chemo, so I would like to hear from you on one of the other days.
See you soon! And have a nice week
Kind regards from Norway from Jojanneke
Not too harsh right? Trying not to sound too-hold-a-grudgey. And kinda clear that I would love to hear from them. On any day of the week, except for Tuesday as today is a chemo day again. So yep, they called on Tuesday. Luckily, in between it all, I could take the call.
This is the update:
- medical journal has been looked at by the specialists,
- they are awaiting the arrival of the CD-rom with all (including the latest) CT scans and MRI´s. Since I will be doing the latest CT scans and MRI´s this week, the CD-rom will be ready on Friday. I will then ship the CD-rom with the flashiest of fast couriers to the AvL and as soon as the good specialists have had time to had a look at it all,
- a video meeting will be set up. The girl that called was kind of taken aback that I didn´t fancy meeting face to face for this, but I do believe that in the end she did understand that both with Covid and me being in Norway and undergoing chemo it wasn´t the most practical of ideas to meet face-to-face.
So... all in all a very good day for it being a Tuesday. The chemo went well today, with all the eggs and broccoli I ate, my blood work looks like that of an elite athlete (on drugs). This evening I will be downing the required 2 liter water before the CT scans will be taken and Thursday evening it is time for the next MRI adventure.
With this treatment, usually the day of the treatment I am sort of ok-ish and then the day after and the day there after are kind of crash days.
Can always build a tent in the living room!
Thanks you guys, I love you for having my back, I love you for offering a listening ear, I love you for shouting out at the AvL (like for real!!) through their open windows, I love you for offering the shirts of your back to make sure I get the best treatment possible.
I got this. For now I do. With you guys as the best moral support crew a woman could ever wish for!
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