dinsdag 25 augustus 2020

Can we restart summer?

So summer is over. Well at least that is what it felt like early this morning when Ylva and me did our early morning round. With only plus 2 Celcius, it won´t be long before we will have frosty mornings again! 

I so loved our summer holiday and yes, I do long back to just hanging out, cycling over the fjell, having wobbly knees high up in the trees at the climbing course, chilling on the veranda in the evening sun and all the other fun stuff Mik and me did during the long and sunny summer holidays. 

But summer is over, as are the holidays. Mik is in his second week of ungdomsskole and I am back in the routine of going to the hospital for treatment. As my cancer is a cancer of the very active type (does cancer also take after its owner I wonder.... ), I just started yet another type of chemo. And a new activity. 

As a single mum to the most fantastic son ever, I totally feel the (sometimes) overwhelming responsibility to go above and beyond to make sure I live as long as humanly possible. And that means not taking everything my dear oncologist tells me for granted. Sure, I totally trust him and the current treatment plan. But I feel there is more out there and that I want to investigate what can be included in my treatment plan. 

So, thanks to the awesome moral support of some very dear friends, I have now started the process to get a second opinion. That is not something that is done overnight as I want to get my second opinion from the mammacare experts at the Anthoni van Leeuwenhoek (AvL) in Amsterdam and thus my medical journal needs to be translated. So, right now I am in the middle of gathering all the info from all the different doctors that are involved in my treatment plan and the top doc will write the required official referral letter. After I have obtained all the medical info, I will get it translated, pay the hefty fee to the AvL and send all the info over their experts. 

What do I expect? Well, to be honest I am not sure what to expect. I want to continue to hold hope that there is way more out there than just another chemotherapy. As no cancer is the same, I just don´t want to settle for standard. I will go to the end of the earth should I have to, if that means getting an even better treatment than I am getting now. 

Having said that: thank you so much guys. Thank you for reaching out to me, thank you for your sweet moral support, thank you for putting up with me, thank you for helping me make the right decision(s). Talk about overwhelming! 

I know I am kinda selfish with everything going on here right now, but that does NOT mean I am not interested in your new house or your new job or the outcome of that very important meeting. It might just be that I forget to ask you about it. Don´t let that stop you in telling me all about it! After all my chemos I just blame this selfishness on my chemo brain, just kidding! 

Back to work it is. There is more phone calls to make, documents to copy and people to see. Oh and my very first parent teacher evening at Mik´s school tonight. 

Life goes on and I love life! 


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